As I type this blog post, I'm 2/3 of the way towards the crowd-sourcing goal of my documentary titled "Quiet Please...", an emotional documentary on a disorder related to the processing of specific sounds in the brain, on IndieGoGo. I've written about how this project came to be on the film's website, on the IndieGoGo campaign page, and also in this interview for Film Courage, but the one thing I didn't realize when I wrote that initial content, was the emotional impact the trailer would have, not only for people suffering with misophonia, but for everyday people who didn't realize this disorder exists.
Here are a few quotes from people who have donated to the film, or who have just been moved by what they saw.
“I have little hope of broader knowledge or understanding but certainly efforts like this groundbreaking film can only help.
"I really thought the trailer was well done. Still amazing to see so much of my experience when people articulate this condition & your trailer did that well.”
“Thank you for taking on this project. I hope it will bring more attention to Misophonia so we can have better research and new hope for the next generation.”
“Thank you and thanks for making this film. I also have misophonia so I know how difficult it often is. I've never gone 'public' with it, so I used the trailer to 'come out' on Facebook to my friends. I'm looking forward to watching the film.”
"It seems to me that social media brought this disorder to light, you are now going to shine that light beyond the subset of misophonia sufferers and out to the general public, and hopefully medical community."
Those words are powerful and inspiring, but I don't take the responsibility lightly. In case this is the first time you're reading about the film, I have misophonia as well and have lived with it for almost 50 years. I realize that the notion that a person could hate certain sounds, to the point where it actually has a name, could sound ludicrous...but it's real and it does take an emotional and psychological toll on those afflicted, as well as on their families and relationships. I'm sure you've heard the phrase "the new normal"...misophonia takes that to a new level.
This is a dream project for me and for my company Action Media Productions, one that I've waited 40 years to do, ever since I shot my first documentary at age 15, about a traffic cop in Elizabeth, NJ. I still have that on VHS tape and you can actually see my style starting to emerge. It's not often you can combine two passions into one and have the end result be powerful enough to change lives. My first instinct is to say "I'm a lucky guy", but luck isn't what brought me here...it was pure determination.